There is a prediction that by the year 2030 every newborn of the modern world will be scanned and by this the possibility to forecast their diseases would expand drastically. One of the main question after acknowledging this fact is whether we are ready to know the future, which might be not pleasant at all? Those concerns were discussed during the panel discussion of The COINS 2019 - “Personalised medicine: an unattainable goal or reality of tomorrow?”
The participants of the discussion were Jevgenija Vienažindytė, who is a Senior Associate at Ellex Valiunas law firm; Eimantas Peičius - Associate Professor at the Department of Bioethics; Agnė Vaitkevičienė, who is a member of Lithuanian Biotechnology Association and Rasa Sabaliauskaitė - Head of Genetic diagnostic laboratory at National Cancer Institute.
One of the speakers Vienažindytė noticed that the idea of individualized medicine is not as new as we might think - all the times when we come to some healthcare institutions, we would like to be treated individually, not generally. “Personalised medicine was used years ago, but then we were blinded by industrial manufacturing and now we are going backwards. The question is whether we are ready in the field and in the context of current development of life sciences to change our ways.” - she said.
Today, personalized medicine is mostly adapted to cancer treatment, more rarely - to autoimmune diseases, diabetes, multiple sclerosis, neurodegenerative diseases. Scientists are also paying more attention to diseases that are not known today - in order to prevent them.
Vaitkevičienė thinks that it is more efficient to treat someone only once instead of taking care of them their whole life. “GlaxoSmithKline announced that they have applied one drug to newborns who have a very specific disorder - the treatment cured it, although the babies were ought to die in their first or second year. If the disease that a person has is long-term, the government would have to pay for their hospitalisation, drugs and that most probably would cost more than the expensive drug, taken once” - she explained.
She gave an example of the project “Stanger visions” by the artist Heather Dewey-Hagborg. The author collected different items from the streets - pieces of chewed up gum, cigarette butts and other things that could be identified as an abandoned DNA source. Afterwards, she used them to recreate genome sequences and, using a 3D printer, made sculptures that would potentially represent the faces of the people that were using those items.
As we obtain all the possible information about one’s health, that inevitably affects not only our future plans or lifestyle, but also our attitude about others. For example, would you even bother to date someone if you knew about their genetic disease? All the participants of the discussion agreed that even if the possibility to get an analysis of one’s disorders or future diseases was available, the public should be widely educated about this and not only learn how to interact with those who might potentially be sick, but also be able to have their own will on the matter.